"Three Months" was the time between my mom's late stage lung cancer diagnosis and when she passed away. It was a very intense three months, but I hope my story and my faith can help you in some ways.

Resources

Caregiver General Resources

(Please consult your medical team for medical information.   These are for general information only): 

American Cancer Associations Caregiver Support:  https://www.cancer.org/treatment/caregivers.html

American Cancer Support Group: https://www.cancer.org/treatment/support-programs-and-services.html

American Society of Clinical Oncology Carcer.net:  Tips for Being a Successful Caregiver

Cancer Care:  https://www.cancercare.org/tagged/caregiving 

Cancer Hope Network:  https://www.cancerhopenetwork.org/

Cancer Support Community:  https://www.cancersupportcommunity.org/

Caregiver Action Network:  caregiveraction.org

Family Caregiver Alliance (resources in Spanish, Chinese and Vietnamese): https://www.caregiver.org/caregiver-resources/ 

Help for Cancer Caregivers:  www.helpforcancercaregivers.org

Imerman Angels:  https://imermanangels.org/

National Cancer Institute Resources for Caregivers:  www.cancer.gov/resources-for/caregivers

Rosalynn Carter Institute for Caregivers:  https://rosalynncarter.org/

National Association of Area Agencies on Aging: https://www.n4a.org/caregivers

Daily Caring Caregiver Resources: https://dailycaring.com/category/caregiver-wellness/ 


Caregiver Organizing and Support Resources

Meal Train (coordinating help with meals):  https://www.mealtrain.com/

Caring Bridge (communicating news and updates to friends and family): https://www.caringbridge.org

My Life Line (communicating new and updates to friends and family and to organize for support):   https://www.mylifeline.org/

Take Them a Meal (coordinating help with meals): https://takethemameal.com/

Care Calendar (coordinating support for meals and other tasks): https://www.carecalendar.org/

Sign up Genius (coordinating meal trains or other tasks): https://www.signupgenius.com/

Housecleaning for Cancer Patients: https://cleaningforareason.org/

Cancer Patient Transportation Resources

Tips from WebMD:  https://www.webmd.com/cancer/chemo-technology-assistance

American Cancer Association (Rides program paused due to Covid19, please check website for updates): https://www.cancer.org/treatment/support-programs-and-services/patient-transportation.html 

https://www.cancer.org/treatment/support-programs-and-services/road-to-recovery.html

Mercy Medical Angels (providing free ground or air transportation to medical care):  https://www.mercymedical.org/

 

Cancer Patient Diet Resources

(Please consult your doctor and dieticians for more detailed help.  These are for general information only):

WebMD:  https://www.webmd.com/cancer/cancer-diet

National Cancer Institute:  https://www.cancer.gov/publications/patient-education/eatinghints.pdf

American Cancer Association:  https://www.cancer.org/treatment/survivorship-during-and-after-treatment/staying-active/nutrition.html

 

Federal and State Resources

(Please consult your legal or financial consultants for more detailed help.  Please consult your medical team for medical information.   These are for general information only):

Social Security Support for cancer patients:  https://blog.ssa.gov/social-security-supports-people-battling-cancer/   (related, list of Compassionate Allowance Conditions: https://www.ssa.gov/compassionateallowances/conditions.htm )

Supplemental Security Income: https://www.ssa.gov/benefits/ssi/

Medicare Cancer Treatment Services:  https://www.medicare.gov/Pubs/pdf/11931-Cancer-Treatment-Services.pdf 

ACSO How to Apply for Medicare when you have Cancer:  https://www.cancer.net/blog/2019-08/how-apply-medicare-when-you-have-cancer

ACS Medicare and Medicaid: https://www.cancer.org/treatment/finding-and-paying-for-treatment/understanding-health-insurance/government-funded-programs/medicare-medicaid.html

 

Pharmaceutical Patient Resources 

Medicine Assistant Tool: https://medicineassistancetool.org/

Needy Meds: https://www.needymeds.org


Cancer Patient Financial Resources

(Please consult your legal or financial consultants for more detailed help.  These are for general information only):

Triage Care Financial tips:  https://triagecancer.org/financial 

Cancer Financial Assistance Coalition:  https://www.cancerfac.org/

Cancer Care Tips for Managing Cost of Cancer:  https://www.cancercare.org/publications/339-tips_for_managing_the_cost_of_cancer 

Cancer Care Co-Payment Assistance: https://www.cancercare.org/copayfoundation#

Patient Advocate Foundation Co-Pay Relief: https://copays.org/

 

(Please consult legal services should you need more help.  These are for general information only)

Family and Medical Leave Act: https://www.dol.gov/agencies/whd/fmla 

Americans with Disability Act:  https://www.ada.gov/ada_title_I.htm

National Cancer Legal Services Network: http://www.nclsn.org/

Cancer Legal Resource Center: https://thedrlc.org/cancer

Triage Cancer’s Employment-Related Laws page, at triagecancer.org/employment-state-laws

American Bar Association Tips:   https://www.americanbar.org/content/dam/aba/administrative/law_aging/caregiving_ten_tips.pdf 

Job Accommodation Network:  https://askjan.org/topics/Caregivers.cfm 

 

Pallliative Care Resources

(Please consult your medical team for more detailed help.  These are for general information only): 

National Institute on Aging:   What are Palliative Care and Hospice Care

American Society of Clinical Oncology Cancer.net:   What is Palliative Care

WedMD:   What is Hospice Care  

Hospice Foundation of America:  https://hospicefoundation.org/Hospice-Care/Hospice-Services

American Cancer Society Cancer Action Network:   https://www.fightcancer.org/policy-resources/patient-quality-life

Vitas Healthcare:   https://www.vitas.com/care-services


Cancer Research Resources

(Please consult your doctors for medical advice.  These are references for research journals and papers only).  

CA:  A Cancer Journal for Clinicians:  https://acsjournals.onlinelibrary.wiley.com/journal/15424863

New England Journal of Medicine: https://www.nejm.org/oncology-hematology

The Lancet Oncology:  https://www.thelancet.com/journals/lanonc/home

Journal of the American Medical Association Oncology:  https://jamanetwork.com/journals/jamaoncology

Journal of Clinical Oncology:  https://ascopubs.org/journal/jco/

Cancer Cell Journal: https://www.cell.com/cancer-cell/home


Grief Support Resources

(Please consult your medical team for more detailed help.  These are for general information only):


American Cancer Society: https://www.cancer.org/treatment/end-of-life-care/grief-and-loss.html

Help for Cancer Caregivers: https://www.helpforcancercaregivers.org/topics/bereavement

Cancer Care: https://www.cancercare.org/tagged/grief_and_loss

1 comment:

  1. SCApril 19, 2022 at 4:47 PM

    Thanks for your kind comment and for sharing your page. There are some great resources on yours as well.

    ReplyDelete

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